|
Action Duchenne is a charity run by parents of
boys with Duchenne Muscular Dystrophy (DMD)
Duchenne Muscular Dystrophy (DMD) is a heartbreaking disease.
Children begin to see their muscles waste away and families
struggle to cope with the diagnosis and day to day management
of this condition. Young men can die as early as their late teens and in their later years
are left wheelchair bound and unable to move unaided or feed themselves independantly. The
only hope for families lies in new treatments that can slow or
stop DMD in its tracks.
Action Duchenne is
the only national Charity that exclusively funds research
for a cure and promotes campaigns for better medical care
for Duchenne and Becker Muscular Dystrophy.
Our HR manager's son Archie was diagnosed at the age of
2 and a half (pictured above on the right with his friend
Zac who also has DMD). Archie is a wonderful 5 year old
who has a go at everything but is now realising he is different
and "his legs don't work properly", he is unable to run as fast as his friends or experience the smallest of joys such as jumping. Here at the
Halfmoon we are dedicated to raising money for both Archie
directly and the fantastic charity Action Duchenne as the only hope for Archie is to find
a cure.
The following acts have all dedicated their time free of charge:
One, Halagoogoo, The Vibrants, Mitsubishis, Suzerain, Tallymans Dark Omnibus, Sacha Abeysinger, Dorp, Narration, Stream of Piffle performing "The Experts" and roaming bar magic from our very own Girth.
The all day event will start at 2pm and we will be welcoming supporters of all ages, we will be holding a raffle during the evening with prizes being very kindly donated from local businesses. Please note The Halfmoon is also proud to say we are fully wheelchair accessible.
Thank you so much for your support, it really means alot to us
Johanna and Archie xx
|
